Ruby has Nemaline Myopathy She loved drawing, telling stories, and exploring her garden full of colorful flowers
One day at school, her teacher, Mr. Barnes, explained to the class that everyone has different strengths and challenges. “Ruby might need extra time to do certain tasks, but she has one of the sharpest minds I’ve ever seen!” he said proudly.
Ruby’s friends loved her creativity and kindness. When she couldn’t run in gym class, they worked together to invent a game that everyone could play. “We’ll call it The Super Sitter Olympics!” her best friend Mia declared, and they all cheered.
One day, Ruby decided she wanted to help others with Nemaline Myopathy. “I’ll write a book about my adventures!” she said. Her family smiled and encouraged her.

Ruby’s Mighty Muscles: A Story About Courage and Kindness

Ruby sitting in her garden surrounded by colorful flowers, drawing in a sketchbook Nemaline Myopathy,

In a sunny little town, there lived a bright and curious girl named Ruby. She loved drawing, telling stories, and exploring her garden full of colorful flowers. But Ruby had a condition called Nemaline Myopathy, which made her muscles weaker than other kids'.

The Colorful Garden

Ruby in the classroom with classmates and mr barnes 

Ruby’s muscles, especially in her arms, legs, and face, needed extra care and attention. Sometimes it was hard for her to climb stairs or carry heavy books. Her neck and back needed special support to stay straight, and she had to eat slowly because swallowing could be tricky.
But Ruby had a superpower—her incredible courage. Even when things were tough, she found ways to enjoy life and learn new things.


Mr. Barnes' Lesson

Ruby in wheel chair and Mia on bleachers in gym playing sitting down

One day at school, her teacher, Mr. Barnes, explained to the class that everyone has different strengths and challenges. “Ruby might need extra time to do certain tasks, but she has one of the sharpest minds I’ve ever seen!” he said proudly.
Ruby’s friends loved her creativity and kindness. When she couldn’t run in gym class, they worked together to invent a game that everyone could play. “We’ll call it The Super Sitter Olympics!” her best friend Mia declared, and they all cheered.


The Super Sitter Olympics

Ruby doing physical therapy with parents to help walk out of wheel chair 

At home, Ruby had help from her doctors and family. They made sure she had physical therapy to strengthen her muscles and devices to help her walk more easily. She even had a special breathing machine for nighttime to help her rest better.
One day, Ruby decided she wanted to help others with Nemaline Myopathy. “I’ll write a book about my adventures!” she said. Her family smiled and encouraged her.


Ruby's Big Idea

Ruby at a desk, surrounded by colorful pages of her book, looking proud

In her book, Lila wrote about how Nemaline Myopathy affects some kids' muscles and how there are different types—like severe congenital, typical congenital, and even adult-onset. She explained that while some kids might have bigger challenges, everyone could still achieve amazing things with the right care and support.

Writing the Adventures

Ruby with other friends with Nemaline myopathy 

Ruby's story traveled far and wide, teaching kids and adults to be kind, patient, and understanding. People learned that even if someone needs extra help walking, eating, or breathing, they can still light up the world with their talents and spirit.
And so, Ruby became a real-life superhero—not just for her bravery but for showing others that kindness and courage can make the world a better place.


Sharing the Book

Ruby surrounded by her family and friends, all cheering and celebrating

One day, Ruby received a special surprise. Her book was going to be published! She couldn't believe it. Her family and friends celebrated with her. Ruby felt like she was on top of the world.

A Special Surprise

Ruby standing on a stage, holding her book with a smile, as a crowd applauds

Ruby's story spread far and wide. It inspired many children to be courageous and kind. Ruby learned that her voice was powerful. She knew she could make a difference. And that made her heart smile.